NARCOMS

Today I completed a NARCOMS survey called Patient Decision Making. It included some of the normal questions but had more interesting questions about taking drugs with certain hypothetical side effects (such as death) with different probabilities. For example, would I take a drug that would cure my MS if there was a 1 in 1000 chance I would die that night; if no, what if it was 1 in 10,000, etc. Some were to reverse disability rather than cure MS. They also used Tysabri specific examples for questions, since that drug is associated with PML (potentially fatal) but is potentially the most effective drug for MS right now. I guess they are trying to determine how desperate we are!